HOW WE HELP
Cure RTD creates brighter futures for everyone affected by Riboflavin Transporter Deficiency (RTD) through research, education and patient/family support.
SCIENCE & RESEARCH
Our Research Grant Program serves to strengthen a growing community of scientists who are committed to working toward our vision of a world without RTD. Grants are provided to researchers around the world with the strategy of funding four primary research areas: basic research, drug discovery, clinical trials and clinical care. All applications are reviewed by our world-leading Scientific and Medical Advisory Board consisting of experts in various fields relevant to RTD. For more information see Research Grant Program.
FAMILY SERVICES
Cure RTD Family Services provides a caring community that offers information, guidance and emotional support to RTD families. From newborns to adults to families who have lost a child, Cure RTD supports every person touched by one of the RTD disorders. We are dedicated to educating, advancing treatments, and finding a cure for RTD.
EDUCATION
Because we always have the latest and most accurate information on RTD, Cure RTD serves as a valuable and reliable resource for anyone interested in learning about RTD disorders. Patients, family members, medical professionals, and other healthcare providers can access information about RTD on our website, over the phone, or via email. In addition, Cure RTD representatives attend and present at major neurological and metabolic conferences around the globe, in an effort to educate and raise awareness about RTD. On July 7th, 2016 we hosted the 1st Annual International Scientific & Medical Conference for Riboflavin Transporter Deficiency. This conference brought together some of the leading RTD researchers to discuss the best path forward for treatment.
AWARENESS & COLLABORATION
We do more than just write checks: we are changing the landscape of RTD research. To help accelerate the development of treatments and find a cure for RTD, Cure RTD is focused on four key strategies:
- Building alliances with academic and industry collaborators
- Developing in vitro and in vivo research tools for use by the research community and industry collaborators
- Funding novel preclinical and clinical research in the RTD field
- Making legislators, governmental agencies, and the media aware of RTD research
Cure RTD believes that to effectively unravel the mysteries of RTD, the worlds of medical science, research, and families must work together toward a common goal: to discover treatments and cures while assuring a better quality of life for those living with the disease.
RESEARCH RIPPLE EFFECT
Many areas of clinical and basic research can come together in unexpected ways. With RTD we are bringing together research involving neuroscience, genetics, clinical medicine and molecular biology. The research findings funded by Cure RTD provide insight into basic biology and many other disorders. As a result, scientific investigations of RTD could also prove beneficial in understanding other diseases such as:
- Muscular Dystrophies (ALS, SMA)
- Parkinson’s Disease
- Huntington’s Disease
- Alzheimer’s Disease
- Mitochondrial diseases (MELAS, MERF, Lebers)
- Friedreich’s Ataxia
